الرئيسية / اﻷﺧﺒﺎر واﻟﺒﯿﺎﻧﺎت الصحفية
اﻷﺧﺒﺎر واﻟﺒﯿﺎﻧﺎت الصحفية - 2009
Arab Genomic Studies
"رفضت أن أترك ابني سجين البيت"
٢٧ فبراير ٢٠٠٩

When the doctor asked his patient Sonia Hashemi 22 years ago whether they know about Down syndrome, were not aware that the search for the meaning of this word was going to change her life forever. "I remember the image of a child on the school board has distinctive features that describe the Mongolian Mongolian or suffers from a disease, I did not understand what my business this time; so Ms. Hashemi said recalling its dialogue with the doctor who helped her on the birth of her child injured in the Abu Dhabi Corniche Hospital.

In an incubator was lying son Saif son four days struggling to survive because of the suffering of the complications in the heart and muscles after premature birth. With the passage of days a nurse advised Ms. Hashemi and delivery by, because babies with Down syndrome rarely live. Ms. Sonia Al Hashimi said: "Those words brought something in myself, it has aroused in me a sense of challenge, where I wanted to prove to the world that my son will live and it would be a remarkable man."

The sword has already won five medals in swimming at the Special Olympics, Mrs. Sonia Hashemi They now head of the UAE Down Syndrome Association.

The Down syndrome - named for John Hayden Angden Down English physician who described for the first time in 1866 - is Jenny genetic disorder caused by a chromosomal abnormality. Usually people with Down syndrome mentally handicapped and may suffer from stunted growth and other physical deformities.

Ms. Sonia Al Hashimi said: "Over the first five years of life Saif did not baptize to do anything, where I stopped to have any more children and devoted myself entirely to his education to become independent." I did everything in order to "stimulate" the child growth, including Show regularly from "Sesame Street" - program a television series American educational for children aims to improve the educational level of the child and combines entertainment and education - as well as muscle and picnics recreational exercises. She added: "painted his bedroom color bustling vibrant and brought him an intellectual and stimulating games, and I did everything I could to wake up when all the senses."

Ms. Sonia Hashemi did not stop at that point, but they learned the English language to be able to read books written in English about Down syndrome, and eventually gave birth to five other children. Saif is now the older brother who cares about his brothers. Ms. Sonia Hashemi recalled many of the nagging social attitudes of parents demanded to withdraw her son from school when the government tried to incorporate it into the Knowledge asking them left at home when attending social gatherings. Ms. Sonia said: "It was so hurt me a lot, but nevertheless refused to leave my child a prisoner of the house." She added: "If people saw something does not seem ideal in their view from the outside, they reject it and by."

According to recent statistics conducted by the Centre for Arab Genomic Studies, generates 21.4 out of every 100,000 suffer from Down's syndrome in the United Arab Emirates, which is almost twice the global average ...